The story in brief

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New Years Eve 2003 I started having uncontrollable diarrhoea. Originally we thought it was just food poisoning and it would pass, however this continued for several weeks. After a considerable amount of test doctors finally diagnosed me with Ulcerative Colitis. I lived with Ulcerative Colitis for just over 3 years, on and off all kinds of medication, undergoing colonoscopies and blood tests, nothing really seemed to help. In September 2007 I had a colonoscopy, the results came back and they weren’t good. I was showing early signs of cancer and it was decided that I would need to have my colon/bowel/large intestine (or whatever else you want to call it) removed. At the age of 17 I had a ileostomy.

I lived with bag for 2 years and then underwent more surgery to create an internal pouch. This seemed like a great idea, over the summer in 2009 I had 2 operations to create the pouch, they were both successful and I was seemingly on the mend. However the next 6 months were spent in and out of hospital due to chronic dehydration causing my kidneys to fail. Doctors were able to stabilise me by putting me on a high dose of antibiotics. The antibiotics stabilised me but did not make me better.

I lived like this for just over a year until 2 weeks before I was due to get married I was back in hospital with dehydration. My doctors discovered that I had Pouchitis (Ulcerative Colitis for your Pouch) and that the best thing to get me well before my wedding was to give me back my ileostomy. 

3 and a half years on I still have my ileostomy. At the moment it is the best solution and having spoken to doctors for the foreseeable future and until medicine advances I will be sticking with my ileostomy

L

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